Wednesday, May 14, 2008

Results

Abi is doing well...
Since the last post, Abi's EEG results showed that she still is having Infantile Spams, but they aren't as patterned as IS usually are. On top of that, she is also having what looks to be Partial Complex Seizures (that would explain her 2 seizure episodes). So, Dr L increased her dosage 2 more times since the the last post and she is now taking 400mg of the Vigabatrin 2x a day. Dave & I both feel like it is working. Although she is still having her 'episodes', they have decreased to anywhere from 1 to 3 a day. The new dosage has made Abi sleepier, but it's a side affect, and once her little body gets used to the new dosage she should be back to normal. I am supposed to call sometime this week & let Dr. L know how Abi is doing & also let him know if her 'episodes' have decreased. Our main goal is to get her IS/seizures under control. Until then, we will continue to experiment with the medication. It's pretty much trial and error.
I wish so bad that I could take away Abi's disease. Some days are harder than others. But most days get easier. Does that make sense? I am so extremely grateful for my family... especially Dave. He is my rock. When I am having a hard day, and ready to give up, that's when Dave comes to my rescue. We never seem to have bad days together. If I'm down, he's up. And when he's down, I'm up. I'm pretty sure the Lord made it that way. I am grateful for our immediate families & also our extended families. We could not get through this alone. And I cannot forget all of our friends!!! I once heard a saying that says "It takes a village to raise a child." And to all of you... THANK YOU! Each one of you have helped our family. It does take a village, to help with a family, to raise a child and to weather the storms of life...
We have been truly blessed.