A couple days after Abi finished her injections we started to notice a rash on her belly and back. Well after 4 days of it, it had spread to her face, behind her ears and up in her hair line. I took her to the Doctor, not thinking that is was a huge deal, until the Dr. diagnosed her with Scarlet Fever!!! He informed me all it really was was a bad rash & strep throat. He said it's just a fancy term they use. Anyway. I felt horrible. She didn't seemed bothered at all & was eating fine. But after 2 days of antibiotic, Abi started to act sick. A week & a half later, I'm happy to say, she is much better & her rash is almost completely gone.Anyway, it's been 2 weeks since Abi has been off of the ACTH. What a change we have seen in her. We literally have a brand new girl. A girl we've never seen before. She is doing so much more than she ever was before she was on the ACTH. She regressed while on it, but most everything & MORE came back as soon as she was finished with the treatments. She is rolling, starting to clap (only on her time), waves "Bye-Bye" & "Hi". She's grabbing for things, using BOTH hands, hitting toys together, studying things... such as our faces, designs, pictures, things she never noticed before. She also bounces to music, almost can pull herself up from a laying position to a sitting position, & grab & hold onto finger foods. The biggest accomplishment we have seen in Abi, is she laughs. She didn't laugh much before, & never laughed while on the ACTH. To see a new light in her eyes & to finally hear a real laugh come out of her is amazing!!! Her weight is slowly decreasing. But we have gotten used to her chubby self. She has been wearing size 3T tops. So, pretty much sharing shirts with Lyvie. Lyvie thinks it's pretty cool, so I can't complain. She is still pretty hairy, but we've have been told by many & also Dr. L that the hair will fall out. I don't mind how thick the hair on her head has gotten or even how long her eyelashes are. But her brows need a definite waxing!!! She is still cute though. Nurse Julie came by yesterday to take one last look at Abi & checked her vitals. I am happy to say everything is normal. What a relief!!! As for her spasms...they are back. She is having one or two daily. BUT they are only when she is woken up from sleeping, or startled while sleeping. They still look like the Infantile Spasms, but we are still hoping that they'll go away. Dr. L informed me that it may take up to 6 weeks until we see a change with the spasms. He said the ACTH is just waiting it's turn. As for groups. She can go out in public in about 2 more weeks. I have to admit, we have taken her out a few times. She cannot be immunized for another 3 months & cannot be around anyone who has been recently vaccinated with LIVE vaccines... such as Chicken Pox, MMR, or Oral Polio vaccinations.
We are so happy to have our "OLD" Abi back, & also the "NEW" Abi. She is so fun! And it is fun to watch her & Lyvie or any kid interact. She's a very happy girl. Sleeps great! And is learning new things everyday!!!
Here is a video I took of Abi laughing last night. I have never seen her laugh this much in her whole life. So it's way fun to watch!
