Things are looking up for her. She has been on the Vigabatrin for almost a month now. Although she is still having spasms, we have seen a great improvement in her developing skills. She now can sit up ON HER OWN; She is progressing well with pushing up on her arms while she is on her belly; she is vocalizing A LOT now... infact, the other night we swear she said, "DaDa"...It was so clear and so cute!!! She is also grabbing for things more now, and seems to be using her left side a little bit more than she used to. It's like she is a new person! She is so happy. The fog has been lifted for her. She has had 2 episodes where she has seized. They don't last long, but it is a concern for us. With the medicine we are trying to get her spasms/seizures under control. We had a visit with her Neurologist & Ophthalmologist last week and her Neurologist performed another EEG on her to see what is going on with her spasms/seizures. I will be finding out the results to the test today, and will post later about
them. She is still on the Topamax and we are working up to a new dosage of 250mg on Saturday with her Vigabatrin. If we DO NOT see improvement, then we will have to go back to the Dr. sooner than July (our next appointment) to determine what else we can do for her. Her eyesight is still great! Since she is on the Vigabatrin we have to see the Ophthalmologist every 3 months, which is fine by us. She tracks well and seems to have no problems with her vision. We are still taking her condition one day at a time, but with each day, it gets easier. She has been such a blessing and we do feel like miracles have happened for her. We are enjoying every moment of every day with our girls and wouldn't have it any other way.
Things are looking up for her. She has been on the Vigabatrin for almost a month now. Although she is still having spasms, we have seen a great improvement in her developing skills. She now can sit up ON HER OWN; She is progressing well with pushing up on her arms while she is on her belly; she is vocalizing A LOT now... infact, the other night we swear she said, "DaDa"...It was so clear and so cute!!! She is also grabbing for things more now, and seems to be using her left side a little bit more than she used to. It's like she is a new person! She is so happy. The fog has been lifted for her. She has had 2 episodes where she has seized. They don't last long, but it is a concern for us. With the medicine we are trying to get her spasms/seizures under control. We had a visit with her Neurologist & Ophthalmologist last week and her Neurologist performed another EEG on her to see what is going on with her spasms/seizures. I will be finding out the results to the test today, and will post later about
them. She is still on the Topamax and we are working up to a new dosage of 250mg on Saturday with her Vigabatrin. If we DO NOT see improvement, then we will have to go back to the Dr. sooner than July (our next appointment) to determine what else we can do for her. Her eyesight is still great! Since she is on the Vigabatrin we have to see the Ophthalmologist every 3 months, which is fine by us. She tracks well and seems to have no problems with her vision. We are still taking her condition one day at a time, but with each day, it gets easier. She has been such a blessing and we do feel like miracles have happened for her. We are enjoying every moment of every day with our girls and wouldn't have it any other way.
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