Friday, we headed down to Primary Children's for Abigayle's "BIG" 24 hour Video EEG. The nurses were quick with getting the electrodes placed & having her head wrapped so we could get going with the testing. Abi cooperated really well, & we were able to catch all 4 different types of seizures (I think). I was a bit surprised at how many seizures Abi had while we were down there. When she would have a seizure we would push a button and then write down the date, time started & time ended of the seizures. Also we had to describe what her seizures looked like. She had a total of 6 seizures during her testing that we seen or caught. (She could have easily had more during the night or ones that were absent & we didn't notice.) If you count how many she had Friday morning before the test, & then the time she spent testing, along with Saturday after the test, Abi had a whopping 10 seizures!!! I am shocked! I have not seen Abi have over 3 seizure a day in such a long time. And for her to be totaling 5 a day, is frustrating. Today I have not seen her have a single one. It would be nice for her to be seizure free! One day that will happen! We will get the results from Dr. L by the end of the week. Hopefully by then, we can figure out what is going on in her little head & somehow find the medication to help stop the seizures. We took quite a few pictures of our long & eventful days spent down at Primary Children's. (Really it was boring.) But we are glad that Abi cooperated & had a successful testing experience!
***Abi just started to do this with her tongue. She watches us do it, & then she does it. It's so fun to watch her do these silly things. She also started giving kisses this week!***
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