Visit to Primary Children's Medical Center

(This is Abi & her Moose the nurses gave her from PCMC. )

We just want to update everyone on our visit to Primary Children's that we went to on Monday. First off, it was a very good experience. Dave & I left there feeling a little more optimistic then we thought we would be. The staff there are amazing! They made us feel like we were the only ones that mattered. They were very thorough with little Abi & so sweet to her. The Neurologist looked over her MRI & did say she was for sure missing her Corpus Callosum, but she could still live a normal life. She would just have to learn differently. They couldn't get all the information from the EEG. They just had the dictation on what they found out about her EEG. They wanted to see the EEG itself, & dumb me, forgot the cd that had all that information on it. So, when Dr. L (the neurologist) came in to see Abi, she was having a seizure. It was good for her to be doing that so he could see exactly what she was doing. He then issued another EEG to be done right there. And usually when Abi has one seizure, she has another within that hour. They got her all prepped for that & we all were able to get a snooze in while the she was testing. And just as the nurse came in to take all the electrodes off of Abi, she started to have another seizure. So, she kept them on & you could see the lines just shoot up every time the seizure would hit. Dr. L was in another room watching on a computer of what was going on. They were able to prescribe her some seizure medication & we were able to get her on them the next day. I just hope & pray that she will grow out of these seizures and not have go through them the rest of her life. They take a lot out of her. I did ask the Dr.'s assistant if they were concerned if she had Aicardi Syndrome. She was surprised that I had known anything about that. I have done my research!!! Anyway, they are concerned, but she said she doesn't match all of the criteria. They want us to set up an eye appointment with the Pediatric Ophthalmologist. What they will do there is look behind her eyes to see if there are any lesions or deformities. This will help determine if it IS Aicardi Syndrome, or IS NOT!!! She said that she doesn't look like she has anything wrong with her, and she doesn't act like she does. They said it is hard to determine if she is behind on anything because every baby is different in developing. The brain does not fully develop until around age 2. So we have got an appointment with the Pediatric Ophthalmologist for Thursday, February 14th. Valentines Day!!! Dave & I are so anxious to get down there & get it over with. We are praying that they find nothing wrong with her eyes. So there is the update on what has gone on so far. I will continue to keep you all posted. Thank you all for all your prayers and concern. Continue to pray for Abigayle. We love you all!