Aicardi Syndrome

Yesterday was an important day for us, Abi had her visit with the Pediatric Ophthalmologist. We showed up a little late, but we were still able to get in and see the doctor. They had to put those drops in Abi's eyes that made them dilate and get huge. We sat there for about an hour or so waiting until we actually had Dr. D come in and examine her eyes. It didn't take very long for him to see what he was looking for. Jayme asked him if he found anything and he said he'd tell us after he wrote some notes. Right then we knew it was what we feared. He dictated a note to Dr. L, the neurologist, and then he hit us with the news. Abigayle was born with Aicardi Syndrome. Even though we knew it was coming it took the wind out of our sails to actually hear it. He allowed us to sit in the room for a moment to be by ourselves. I haven't done my research on this yet, but I know it isn't the greatest news for us. Abi may have some physical set backs, and some other issues we may get to deal with later on, but on the way home from SLC it hit me. We have been blessed with one of the most special of our Heavenly Father's children. She has the opportunity to come here on earth and receive a body, but she won't have to deal with having to overcome the choices between good and evil, because she has already proven it before she was sent to be here with us. I know that even though it may not be how I wanted it to be for her, it is how her Father wanted it to be for us. She is our ANGEL.
Posted By: Dave